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January 30th, 2008

Josh Sommer fights back

Junior Josh Sommer is not your typical cancer patient. In fact, there’s not much about him that could be described as “typical.” What struck me most about our interactions over the past week was the sheer amount of energy and passion for the Chordoma Foundation he had bottled up inside. When he spoke, the countless hours of research and planning came through, and I could tell I was talking to a rare type of person. He didn’t need to look up facts or figures during our conversations. His memory served as a working encyclopedia on chordoma and the foundation’s fight against it.

In speaking to his mother, I began to understand where he got his drive for results and ability to transform visionary statements into reality. The two didn’t just talk about what needed to be done–they talked about what they had already done and what they planned to do going forward. The list of tangible accomplishments, from hosting the First International Chordoma Research Workshop to securing hundreds of thousands of dollars in funding from the National Institutes of Health, was impressive, especially considering the Chordoma Foundation got off the ground less than a year ago.

The odds against Josh being diagnosed with chordoma at such a young age with a lack of history of the disease in his family are astounding. Yet I never detected a hint of self pity in our interactions, nor resentment about his situation. He remained focused on what he could do to work for a cure, and I couldn’t imagine a person better suited to lead that search. The Chordoma Foundation has accomplished much so far, but they need more help going forward to achieve their ambitious goals. I hope the article has done at least a small part to raise awareness about the foundation and Josh’s remarkable efforts to fight chordoma.

-Matt Johnson

For more information on the Chordoma Foundation, please see:
http://www.chordomafoundation.org
http://www.curechordoma.org

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